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SWAN UK (syndromes without a name)

SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families of children and young adults with undiagnosed genetic conditions. We are run by the charity Genetic Alliance UK.

Joining is free for any family in the UK with a child (0-25) affected by an undiagnosed genetic condition.

As a member of SWAN UK you can:

  • Make contact with other families who understand the unique challenges of raising a child affected by an undiagnosed genetic condition
  • Attend free, fun whole-family events
  • Access 24/7 information and support through our online forums
  • Receive our monthly and quarterly newsletters

Email: london@undiagnosed.org.uk to find out more.

For general enquiries email: info@undiagnosed.org.uk

To join SWAN UK email: joinus@undiagnosed.org.uk

Who to contact

Contact Name
Jane Curzon
Contact Position
SWAN UK - Parent Rep - London
Telephone
020 7831 0883
E-mail
london@undiagnosed.org.uk
Website
www.undiagnosed.org.uk/

Where to go

Name
Genetic Alliance UK
Address
Level 3, Barclay House
37 Queen Square
Postcode
WC1N 3BH

Other Details

Availability

Age Ranges
Referral required
No
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